This is taken from someone else on FB who has been around here previously:

May 12 is International Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME) and Fibro Myalgia (FM) awareness day. Living with CFS/ME for many years has been a challenge for me and my family in so many ways. I don’t talk much about having CFS/ME and it is not a well understood illness, but I think it’s important on this awareness day to share a bit here. I was diagnosed with CFS many years ago but was able to manage. However, 11 years ago I had to leave my much loved job as an elementary school teacher-counsellor and life with my family has been impacted in a number of ways. My symptoms include significant fatigue and weakness, post exercise malaise (heightened symptoms after minimal activity), some concentration difficulties, sensitivity to noise/stimuli, and feeling like I have the flu most of the time with headaches, nausea, joint pain, and occasional vertigo. It is unpredictable how I will feel on any given day.

While CFS has shifted my life considerably and I certainly have my ‘this sucks’ moments, I am grateful that I do not have severe CFS/ME and am not bedridden. I am also truly grateful that I have a supportive, understanding, loving partner and a caring, helpful child, and overall life is very good. I have found activities that work for my energy level at my own time and pace and things that feed my creativity and sense of purpose. Most people meeting me don’t realize how lousy I am feeling and the push it takes to get out and about. That’s pretty common with CFS/ME. We might look fine when you see us, but you don’t see the significant effort required to get there -- and luckily you don’t see me when I’m in bed or on the couch, which is fairly often. The internet has been positive for connecting with the outside world for many of us who spend time being rather isolated at home.

Again, I share this for awareness, certainly not for people to feel badly for me. We all have our stuff to deal with. I am fortunate that despite some health challenges, I have a really wonderful life.
But please keep in mind those with CFS/ME and FM who are confined to bed much of the time and those who do not have supportive and caring people walking this challenging journey with them.