Alex's picture

Alex

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Are you Having trouble Remembering? Does someone you know does?

I have problems with memory and organization. it is worse then most people.this is due to neurological disability call PDD-NOS, and having had HIV related encephalitis many years ago.

Also some days I am still ill so it is hard to make plans ahead of time. I have helped solve this is using ; my Ipod touch which has a calendar function. (many phones, computers and PDAs do too.) Everyday I check if I am able it to see what I am doing or could be doing. If I remember to check my Church web page it is difficult sometimes to find the information I want about events. Events are not listed by date, and and when I find the information I have to transcribe it into my calendar program as the text is often embedded in jpgs. I have nerve damage to my hands which makes doing that difficult to do, as some people with arthritis and other conditions do too. Saints Anglican Westboro, a Church we share a building with uses a program called Google calendar, which is free and accessible from any web server. It can be synced with many programs and devices including with my Ipod touch, Nokhia phones, and other some other phones and PDAs. So I setup a similar Google Calendar for my Church, First United. Now I can look at the web, or check my ipod and see what are all of my activities are that day, plus I can click a button and see if First is holding any special events, in the upcoming month, or I can click another button and see all events being held in the building that First shares with All Saints Anglican. So but the church web master presenting information about events in this way, she makes it more possible for people with certain challenges attend church events. Thus making the church event more accessible, and inclusive of the the diversity of people that exist. First United Events http://www.google.com/calendar/embed?src=4o3v0762nc1l9p47l2p2om09pc%40gr... www.allsaintswestboro.com.  My page on www.accessiblechurch.ca which shows one way to emebed calenders on your your home pages. As well when I know for sure I want to attend an event and will need a reminder. I just click on the link inside the events description and it is automatically added to my own google calendar which is set up to synchronize with my calendar on my ipod touch. I can also add a reminder feature which will alert me in advance at a time of my choosing. (15 minutes, 1 day, or more.) Google calendars also has an RSS feed so that people can be alerted when new events are added through RSS readers like Outlook, or through homepages like Igoogle, or MyYahoo. So what do you think? Are there ways you have overcome barriers or challenges that interfered in your ability to particpate as much as you would like in society or the church?

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LBmuskoka's picture

LBmuskoka

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I am a total Google calendar convert. 

 

I also set it up on our Church's website and the ease of use is wonderful - particuarly because our web host software is not that friendly and the old way of embedding was a nightmare but I digress.  I would recommend it for any Church websites.

 

The calendar also has a map link that you can attach to each event, that will give directions to anyone unfamiliar with the area or if the event is being held somewhere other than church.

 

I have posted agenda items for Board meetings and you can email the agenda and the calendar update directly from Google to everyone on your list.

 

My only problem was that due to weather and winter illnesses I didn't get to church enough to keep up to date but that is an operator bug not a system one

Alex's picture

Alex

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Can you post your church's web address where the google calendar is embedded (at least the public parts, so that I and others can see how it is being used.

Thanks

Alex

carolla's picture

carolla

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Hi Alex - great idea for this thread.  It's so interesting how current electronic devices are helping all sorts of folks these days.

 

Our church is just adding a calendar to our website.  We're just getting ready to tell our congregation about it - so you're getting a preview!

 

We had our webmaster look into finding one that was free that might meet our needs ... she recommended one called Famundo ... it's free which is good.  I believe it can synch with other utilities as well, as you described your google calendar doing.  It gets backed up daily.  It's very simple for our admin to upload events.  Using the "tags" feature at the top of the calendar allows one to eliminate unnecessary info - for example if you just want to know what time choir is - use that tag, and only choir shows up.   If you want to take a look - although I do recognize the text is small, which is a barrier - it's at www.firstportcredit.com  - I'll be interested to hear what you think. 

LBmuskoka's picture

LBmuskoka

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For you Alex

 

Trinity United Calendar

Alex's picture

Alex

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Both are Really Really Cool. Just the sort of trhing i can use to show people, how good lookingh, easy to use and practical for all sorts of people.

I only mentioned google because that whats I know. I also know most calendar can be synced with other calendar programs.

 

 

LBmuskoka's picture

LBmuskoka

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Very nice Carolla, I particularly liked the location feature - something Google doesn't offer.

 

btw, your church is in my old neighbourhood.  Nice to see good things happening there.

Crusader's picture

Crusader

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As usual and planned I have not read the replies.  You are doing what you can to remember, and to function on schedule with your physical environment.  But I suggest some health remedies - brain food.  Take Omega 3's, fish, fish oils, Ginkobaloba, and generally B-12 in a multi vitamin, once a day.  It's a fairly simple routine.  Also play mind and memory games.  Cease or cut down on any unnecessary medications, and STRESS that may be interfering with memory and neuron function.  Believe it or not, moderate exercise, if you can remember what you're doing and where you're going, seriously, is a catch-all that is good for all parts of you.  Endorphins, serotonin etc. will be produced making you feel better and alert.  Just avoid strain, which causes the adrenals to over-secrete, and produces adrenaline, rapid heart beat, and muscle-cramping lactic acids.  God Bless!

Alex's picture

Alex

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Doctor wrote:

As usual and planned I have not read the replies.  You are doing what you can to remember, and to function on schedule with your physical environment.  But I suggest some health remedies - brain food.  Take Omega 3's, fish, fish oils, Ginkobaloba, and generally B-12 in a multi vitamin, once a day.  It's a fairly simple routine.  Also play mind and memory games.  Cease or cut down on any unnecessary medications, and STRESS that may be interfering with memory and neuron function.  Believe it or not, moderate exercise, if you can remember what you're doing and where you're going, seriously, is a catch-all that is good for all parts of you.  Endorphins, serotonin etc. will be produced making you feel better and alert.  Just avoid strain, which causes the adrenals to over-secrete, and produces adrenaline, rapid heart beat, and muscle-cramping lactic acids.  God Bless!

Thanks for the advice. Except for the Ginkobala, and B-12, I am already doing what you suggest, (or at least trying to do so.) I also have problems remembering to take my medications and vitamins. However I try to eat products with a lot of healthy fats like wild salmon. I also avoid unhealthy fats, and when it comes to using cream or butter I use organic versions, This is because natural and organic products have much higher levels of healthy fats and lower levels of unhealthy fats.

Farmed salmon which eat animal feed has a significantly lower percentage of healthy fats then wild salmon. The same is true for organic cream and butter. In fact I believe organic butter is not just better then regular butter, but also margarine.

 

SLJudds's picture

SLJudds

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My memory has been getting spottier for years. Not losing my marbles though - I got A's on both university courses I took last year, one with a 100% average.

I still can't forget the stuff I'd rather lose, but I'm a dead loss for names and I get mental blocks on words even though I have a large vocabulary.

Just a part of aging.

carolla's picture

carolla

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100% SLJ - that's amazing!  Congrats on that.

 

My husband can watch 5 seconds of an old movie & tell me what it is; or listen to a few bars of music & tell me the name of the song ... but he doesn't remember the names of the people who live up the street ... go figure. 

 

Hey Alex - does the Ipod set up to chime/alarm at designated times?  Some people use that to remind them to take meds.  Love the new technology!

 

LB - so you're a former PC girl!  Lake Ontario definitely isn't Muskoka, but I find an occasional walk on the cobble beach in Jack Darling Park is quite soothing.

Alex's picture

Alex

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My problem is with my short term memory. I have  used timers in the past when I took drugs at multiple times during the day. I use my ipods calendar function to remind me to do all sorts of things. When I visit people or go for a walk I set it to beep to remind me when I know I have to leave.

My problems with my meds started after I stopped work and returned to school. Having an irregular schedule is tough for me. I have to take my meds with food and don't eat enough in the morning to tolerate them. Plus if I take them at night it disturbs my sleeping.(like I did last night) Last year I started a drug that had to be taken twice a day for ADHD, and another one in which I need to take every day for blood pressure to deal with a side effect caused by the ADHD drug. I am not too concerned about missing my Anti-virals as it has happened so often that it appears I am one of those people who are able to keep my viral load undetectable as long as I remember to do so 3 or 4 days a week.

My real problem is remebering to take my drugs with me, or forgeting my ipod at home. Last November a Rabbi I know told me about a key chain sold at Shoppers Drug Mart that has a container to hold pills. He also suggested I use a fanny pack and to always keep my wallet, ipod, and keys in it. Since I can not leave home without my keys I would be forced to find my fanny pack. the only glitch is that I find the fanny pack confining, (I can not even wear belts, I usually wear suspenders) and sometimes I forget to put my keys back in my fanny pack, or forget to load up my key chain with my pills. I also sometimes forget to take them at lunch when I am distracted, but it has however considerably reduced the number of times I forget to bring them with me.

 

 

LBmuskoka's picture

LBmuskoka

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carolla wrote:

LB - so you're a former PC girl!  Lake Ontario definitely isn't Muskoka, but I find an occasional walk on the cobble beach in Jack Darling Park is quite soothing.

 

And a drive through Mineloa could almost invoke a Muskoka forest

 

LB - tripping down memory lane

carolla's picture

carolla

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Lots of great strategies there Alex!  So true, that things that happen inconsistently are hard to develop into routine patterns too ... but sounds like  you're getting there!   Do you use a Backpack or some sort of bookbag for your schools stuff?  Perhaps a pocket there would be useful for keys, ipod etc.  I'm sure you've already thought of that tho.

carolla's picture

carolla

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LB have you been to Mineola lately?  It's still well treed, but I'd say about 80% of the properties are now occupied by ridiculously huge palaces ... who the heck needs a house with 10,000 square feet anyway?  The excess bothers me.   And they've started working on a 22 storey condo tower at the corner of Lakeshore & #10 - yuck!  

LBmuskoka's picture

LBmuskoka

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Oh no!  How could they have done that.  Sheesh, tearing up paradise not to mention some truly beautiful homes.  I am so glad I live in the middle of nowhere - did I mention I saw an otter dance across the pond last week, what a beautiful sight.

 

I'll retain my memories of Mineloa as a pocket of treed beauty and start dancing with the otters.

 

LB


Memory is a way of holding onto the things you love, the things you are, the things you never want to lose.      The Wonder Years

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