You know what's funny? I automatically posted my first message in the Relationships forum without even thinking about it. It wasn't until much later that I even realized that there was a forum on Health topics, even though I've posted there before. When I realized that, I also realized that it's probably because this isn't about cancer for me...it's about Jim, our relationship and our family. Sometimes the things we do without thinking say a lot about us.
Jim officially has Stage 3C Melanoma. The cancer has definitely spread to at least one lymph node (the one that was first noticed) and he has 2 other lymph nodes in that same area that have become enlarged. He has a PET scan scheduled for Tuesday afternoon to try to determine how many lymph nodes to remove, then he will have surgery. They will remove a larger area from the back of his leg around where the original malignant mole was and they will remove at least all the lymph nodes on the left side of his groin. This will leave a gap in his leg, so the muscle will have to be moved over, which will leave a permanently numb area on his left hip. The lack of lymph nodes will also likely lead to fluid retention and swelling in his left leg which could also be permanent (although some people experience little to no swelling).
According to the reading we've done, the five year survival rate for Stage 3C Melanoma is 40% and the 10 year survival rate is 24%. We're hoping that his odds are actually a little higher since those stats don't take in to account the age of the patient or the location of the melanoma and because they are obviously based on people who were diagnosed at least 5 or 10 years ago, who didn't have access to today's most current treatments at the time. At the same time, we're realistic people. It makes sense to hope for the best, but also to prepare for the worst.
Anyway, that's what's going on.
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Comments
Beloved
Posted on: 11/21/2011 00:54
MistsOSpring . . . that is an awful lot of going on! Sounds like Jim (and therefore you) have quite the road ahead of you.
There will be many here at Wondercafe to support you with caring, enouragement, words, prayers, and hearts of concern. I hope there are many in your life that are with you to physically help you through . . . to offer to do things for you that need done, to sit down and have a cup of tea and chat, to offer a shoulder, a kleenex, and a hug.
Along with you, we will hope for the best. And for whatever your worst happens to be on any given day, many are here for you.
(((((((MistsOSpring)))))))
Alex
Posted on: 11/21/2011 01:26
Remember too that stats do not take into account variable like attitude. A good attitude not only heals, but is important for us to learn to embrace what we do have. In my experience Sharing is an important way of getting or keeping a good attitude. So I would encourage anyone else to do so. Keep others involved.
I would recommend the Canadian film One Week for all, but especially for any person facing a diagnoses of a life threatening illness.
EasternOrthodox
Posted on: 11/21/2011 11:55
Oh Mists, I can hardly blame you for forgetting! What a terrible load for you and your husband to bear. We all send our hugs, prayers and whatever other encouragement we can.
kaythecurler
Posted on: 11/21/2011 12:33
What a load for the two of you to carry. I'm sending warm cyber hugs and whatever treat will help you cope. Also hoping that some flesh and blood people are holding you as needed.
Pilgrims Progress
Posted on: 11/21/2011 16:49
Mists,
You are living in one of those "dark night of the soul" times in life.
You seem to be coping with it well - you are obviously a woman of courage.
All the same I'm sure you and Jim have moments when you're overwhelmed with feeling vulnerable....... From my own experience, in these times of vulnerability, touch can be more comforting than words.....
Keep the candle of hope burning in your heart, m'dear.
somegalfromcan
Posted on: 11/22/2011 00:10
Mists - I have no words, just two ears to listen and two arms to hug with.
myst
Posted on: 11/22/2011 14:46
MistsOfSpring ..... soft thoughts and tender care during this very difficult journey.
waterfall
Posted on: 11/22/2011 15:32
Mists my prayers are with you and Jim.
Alex
Posted on: 11/22/2011 15:53
misplaced post
SG
Posted on: 11/23/2011 08:39
MistsofSpring,
My thoughts and prayers are with you both and all those who love you.
Pinga
Posted on: 11/23/2011 09:00
MistsofSpring ...it is about relationships, isn't it. Do take care of yourself. For me, though my head can tell me the stats are old, that this or that is different, I can sometimes carry around a fear ...but what if...
My hope for you is that you are able to live into the possibility of change and improved medicine bringing about different results, and that you can live in this time with the cup is half full..and hold your relationship.
peace be with you
Beloved
Posted on: 11/23/2011 09:39
Thinking of you today . . .
carolla
Posted on: 11/23/2011 19:45
hey mists - thanks for the update, I'd been wondering how you and yours were doing. You do actually sound more settled than in your first thread about this ... while the news isn't great, it's better than not knowing, in many ways. Holding you and Jim & your little one in my thoughts and prayers.
crazyheart
Posted on: 11/23/2011 21:59
You know that you are in my heart
Tabitha
Posted on: 11/23/2011 22:59
Thanks for the update Mists. It sounds like a treatment plan has begun. My prayers to you and your family. Your husbans is thehome doing childcare i think.
You might one to read the book "Postcards from the Valley" by David Guillano-our former moderator. He talks about his journey through the valley of cancer and treat emnt and life.
gecko46
Posted on: 11/24/2011 19:12
Prayers for you and your husband's journey, MistsOfSpring.
BetteTheRed
Posted on: 11/24/2011 23:07
Praying for strength and loving arms as you go through this together, Mists. Ask for help wherever/whenever you need it.
Beloved
Posted on: 11/25/2011 10:06
Thinking of you today MistsOfSpring, and your hubby too!
qwerty
Posted on: 11/25/2011 12:00
I was wondering how things were going with you two ... My thoughts are with you both. As far as the numbers go they certainly are scary but they are also probabalistic and are therefore not determinative by any stretch of the imagination. So continue to do what you have done all along and live and love one another as if you had no idea how long you each will live.
Pinga
Posted on: 11/25/2011 21:00
I like that qwerty.....hope you are able to mistsofspring
blackbelt
Posted on: 11/28/2011 22:25
Hi MofS
when my wife had her first heart attack she was 48, Doctors gave her one yr to live because of the permenant dammage to her heart, 5 yrs latter she had a 2nd heart attack and was on life support for 3 days, Dr's wanted me to pull the plug, she surived, that was 4 yrs ago, shes still alive.
The moral of my story is, Doctor can go by stats alone, but God is in control, have faith
EasternOrthodox
Posted on: 11/29/2011 00:02
That is great to hear, Blackbelt!
MistsOfSpring
Posted on: 11/29/2011 00:34
Thanks again everyone. I'm still trying to be hopeful over here, but it's hard.
Jim has his pre-op assessment tomorrow and his surgery is scheduled for Dec. 5th.
blackbelt
Posted on: 11/29/2011 00:58
Thanks again everyone. I'm still trying to be hopeful over here, but it's hard.
Jim has his pre-op assessment tomorrow and his surgery is scheduled for Dec. 5th.
i feel for you , believe me, i have suffered much along with my wifes health, depersion around teh corner, feeling helpless and hopeless , my only strengh was reading scripture, even if i didnt understand it soothed my troubled soul.
I truly pray to the God of mercy for your husband and you
Beloved
Posted on: 12/01/2011 16:11
Thoughts continue to be with you and your husband as you await this surgery, and also with the many who are fighting a battle with cancer.
seeler
Posted on: 12/01/2011 16:20
"Warm thoughts and prayers heading your way.
Tabitha
Posted on: 12/01/2011 17:45
positive restful thoughts headed your way as you move towards the date of surgery!
kaythecurler
Posted on: 12/02/2011 11:10
Peace, love, joy and lots of HOPE to you and your loved ones Mists. Please drop in as time and energy permits and update us about your good and not so good moments.
Pinga
Posted on: 12/13/2011 23:04
mists, just wondering, is there anyone from wondercafe near you....just thinking sometimes it is good to get together for a cup of tea or coffee....i know we haven't done that locally..but i don't think you are from sol ont.
take care of youself. thinking of you tonight
Pilgrims Progress
Posted on: 12/14/2011 00:38
Thinking of you and yours Mists.
I know from my own experience just how hard it is - but know that others care.......
qwerty
Posted on: 12/15/2011 10:37
Mists ... Thinking of you and Jim . Hoping for all of you as a family.