Alex's picture

Alex

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Today In Church I Tried Something New

Today was a new day.

 

I finished almost year long project and had my first use of it. It helps me overcome some of the barriers I face to participating in church. It was a project I started last year, but was delayed by several factors.

 

I shared the idea with everybody here at Wondercafé sometime last spring.

 

One of the first problems I have been participating in church services is that sometimes things are a bit too fast for me.

 

I had trouble keeping up. I had difficulty going back and forth from the church bulletin to Voices United and then sometimes also More Voices United, on top of that I also had inside my bulletin the and newsletter of the church. By the time I found the song as listed in the bulletin, often we are already well into singing it, so I often missed out on participating fully. Also I have problems with my memories, so after singing verse two I would have forgotten that when we returned to the top of the page, that we would now start on verse three and I would have to wait until I could figure wrote which verse we at.

 

I also have nerve damage in my hand so when I was holding Voices United. It was a slightly painful for me to hold the book and thus distracted from the experience of church.

 

Keeping up with particularly our challenge as I was recently a member of church, but also due to attention deficit disorder and what has now been called high functioning autism, which means my brain is very busy dealing with all sorts of senses, ideas, memories and unrelated activities.

 

So I decided to scan Voices United and input it into my PDA, a Dell. However I had a very frustrating summer and fall with my PDA as it was always crashing and it was not working out very well. The Dell PDA was over three years old and I had bought it for myself to use at school to help me with my memory as well as to record classes. It ran Windows mobile five.

 

So  I actually bought a iPod touch. Which is more than an iPod but has all of the features of the PDA syncs well with my Outlook express. It's actually also much better than my old PDA and that the touch screen technology and allows me to enlarge or shrink text as I am reading it.

 

So now that I have fully scanned Voices United and in the process of scanning more Voices United as I need it. I started receiving the church bulletin as a word document. Inside this document I insert the song from Voices United and More Voices United.

 

So for the first time here after being in church I did not once lose my place and get behind, I started singing at the beginning of every song along with most other people. I fully participated in all of the prayers and responses. I also felt no pain from holding my iPod. It was great, and now that I am doing it I have a better understanding of how I can better format words to the music to further make it of use to people who have visual impairments, to be able to magnify the song texts, which is embedded in the sheet music as a jpg.

Next I want to enact a plan I have to deal with the fact that I often forget to take off my name tag, and then forget the next Sunday to put in on.

Then my next project is to actually read format Voices United and More Voices United into music XML so that it can be easily formatted into many different editions that will adapt well to the particular device one is using, and according to the type of disability one has. Whether it's a PDA, iPod touch, smart phone, the new Kindle or other E-reader. Or whether you have a physical disability or a attention problem or some other type of disability. Or even just for people who would like to save some trees and use technology that they already have at home for other purposes.

 

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graeme's picture

graeme

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well, I certainly am impressed. there's a lot of work in there, and an awful lot of intellectual skill in organization and learning technology. However, your disability might challenge you, you are obviously more than a match for it.

My own is a small one, but one I cannot cope with. Most hymns were written by people who hate men. That's why most hymns jog along in a Christian sort of way for the first three verses keeping themselves respectably between middle and high C. Then, in line four they suddently leap to high D or worse.

Coincidence?

I don't think so.

graeme

eands's picture

eands

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Wow!

I think you're awesome...!

carolla's picture

carolla

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Wow Alex!  I do remember your original posting about this ... you have been VERY dedicated to finding a workable solution - congratulations to you!  It does sound like quite a bit of work, but I imagine it'll get much easier as you go along.

 

Now the name tag thing ... if you work that out I'm sure MANY people will want to know your solution!!  Maybe we should make them like the "invisible fence" they use for dogs sometimes - when approaching the church door a little shock would remind us to return the name tag! 

realmseer's picture

realmseer

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Very proud of you! You will in turn help sooooo many.

((((((((((((((((((Virtual Hug))))))))))))))))

Alex's picture

Alex

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I had some sort of glitch which meant I posted this topic twice. I deleted the second one, but not before Birthstone made this comment

Very Cool!!!  About time and

Very Cool!!!  About time and you should share your step-by-step instructions for doing so.

Today, I felt like I was holding an entire tree in my hands with all the inserts & fancy schmancy announcements.  That is a good enough reason for offering new methods.  Accessibltiy makes it a no-brainer.

Alex's picture

Alex

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I will give more details on the process later. But before anyone asks the most common question I get"Why not just have someone help you and hold the books for you?"

I have to mention that if some is right next to me during prayer or moments of silence, it screws up my minds ability to focus, so I prefer to sit alone in church. 

Arminius's picture

Arminius

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graeme wrote:

well, I certainly am impressed. there's a lot of work in there, and an awful lot of intellectual skill in organization and learning technology. However, your disability might challenge you, you are obviously more than a match for it.

My own is a small one, but one I cannot cope with. Most hymns were written by people who hate men. That's why most hymns jog along in a Christian sort of way for the first three verses keeping themselves respectably between middle and high C. Then, in line four they suddently leap to high D or worse.

Coincidence?

I don't think so.

graeme

 

Hi graeme: I just sing these songs in a lower key. Sounds good in harmony with high female voices. But one needs a wide ranging bass voice for it, and I'm lucky enough to have one.

Arminius's picture

Arminius

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Alex wrote:

I will give more details on the process later. But before anyone asks the most common question I get"Why not just have someone help you and hold the books for you?"

I have to mention that if some is right next to me during prayer or moments of silence, it screws up my minds ability to focus, so I prefer to sit alone in church. 

 

Hi Alex:

 

I am in total awe of your technological skill! And I look forward to reading more about the process.

 

lastpointe's picture

lastpointe

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What an amazing project Alex and I am so glad you could use it fully during the service.

 

I wonder if your church has screen/video / computer technology.  they perhaps they could put your system on the screen for others to follow along.

 

Everyone forgets those names tags too.  One idea would be to put it on a shirt or hat and always were the same one.  Or to take it off at home and put it directly onto the shirt you could wear next week.???

 

My dad always wore the same blazer and his just sat on the lapel forever.

 

 congrats again.  I hope your church has you on the Technology committee or thw Website committee as you seem like the perfect person for both jobs to me!

Birthstone's picture

Birthstone

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Alex - I can't imagine (well, yes I sadly can) that people honestly think it works to have someone stand with you & hold the book.  How frustrating, how controlling- If I'm bored with the sermon  or whatever, I often flip through the hymnbook, and why not!?  Trying to pray or cry a little, or smirk or whatever is a personal thing and to have someone looming over you is not giving you independence, it takes it away. 

SG's picture

SG

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Alex,

 

Thanks, more than you can ever know.... I was a member of the choir and simply faded out. I have a good voice, if I say so myself, and am very musical (played in a band for years)... but I am also dyslexic.

 

When asked to speak, my notes make sense to me and nobody else. Whatever I must share, I spell check everything and have the wife proof read it. Doing a service, the bulletin posed a problem, it is written for others and my mind jumbles it. I began printing out one special for myself when I have to read from it. The same as I print out Bible verses that I type when I am asked to read. It is the only way I can read from paper in public without making a mess of things and then starting to stutter.

 

I have learned to function with it well.

 

The choir, I could not manage. I simply dropped out, though I love to sing and the choir needed my deep voice with all sopranos and 3 altos... What happens is, my mind has to work out words, not simply read them. I would practice and could not handle memorizing all the words to all the verses.... I need a memory jog and a quick glance... what I cannot do is get to the next verse when I was supposed to. I was always off a bit at the top of a verse and my deep voice stood out amongst all the high ones. It was only at the beginning of a verse. I quickly juggled myself and the first couple words told me what I was supposed to sing.  

 

If I put the verses in my PDA, typed by me and continuous, not having to find the verse in the list... they will make sense to me and I can sing them and not miss a beat.

 

What is the legality regarding copying VU or MVU? Is there a fee?

Peace,

StevieG

RevMatt's picture

RevMatt

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Screw legality.  Do it.  If any hymn writer really objects to this kind of project, they need their head examined.  Now, if you want ot make money of the project, that's something else.  But for this use, just do it.

 

Tell 'em I said it was OK :)

Birthstone's picture

Birthstone

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RevMatt wrote:

Tell 'em I said it was OK :)

lol - I say that all the time, usually works out ok , and in this case, I completely agree.  In fact, they should be approaching you (Alex) with a cheque in hand to make it work for others too.

RevJamesMurray's picture

RevJamesMurray

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Make a virtual name tag  saved as a document which can be read on your Itouchie thingy screen. Carry your itouch in a little pouch hanging around your neck. So when you go to coffee time, you flip to the nametag page, and there it is for all to see!

Alex's picture

Alex

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StevieG wrote:

What is the legality regarding copying VU or MVU? Is there a fee?

Peace,

StevieG

 

It is legal to do so under certain contexts. If you want just the words, email national office ,(I'll get the get mail I use later and post it here) and they will send you free copies of the text.

When it comes to sheet music however it is more complecated. I used a copy of Voices United  from the University Libary, and scanned it in the special needs room.

In the copyright act, disabled people are allowed to get print material in alternate formats from their libaries without any copyright infringment.

So I am covered under that part of the law.

If you do not get your copy from the libary, (and legally I can give you my copy of the sheet music if you have borrowing priveleges at the University of Ottawa Library (most students, and employees of Universities accross Canada I believe, but I'll have to check). You can scan your own copy of any book as long as you own it and do not share it.

However it is labourous to scan books. Especially doing it one page at a time, on a cheap home scanner.

However I do not see why if I have someones word that they own a copy of Voices United, or that your Church will give you one. I can then email the sheet music to you so you do not have to go through the same long process I did. Once I have finished More Voices I can do the same for that. Hopefully eventually the publishers will negotitate electronic rights to the sheet music and then they can sell Voices electronically. It should be cheaper then print and save some trees as well.

I can be reached at www.accessiblechurch.ca

 

Alex's picture

Alex

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Birthstone wrote:

RevMatt wrote:

Tell 'em I said it was OK :)

lol - I say that all the time, usually works out ok , and in this case, I completely agree.  In fact, they should be approaching you (Alex) with a cheque in hand to make it work for others too.

 

Excellant Idea. I will need to go to Staples and see if I can get a plastic name tag holder that will fit my ipod touch, or find an ipod holder that I can hang around my neck. I am worried about the power being drained, but I could achieve the same effect by printing my name on a sticker and adhering it to the back of the ipod touch.

Pinga's picture

Pinga

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I would think that if the church has enough copies of a VU for their church, then, the usage of it electronically is fine.

Would have to doublecheck that..but, that is how I remember it.

 

Also, if the church belongs to LicenSing...hmm..should assist with coverage as well.

 

the trick for the copyright is for Alex to not distribute to anyone who doesn't fit the category, i would think....and then break copyright.

 

either way..though, i'm with revmatt...

 

well done, Alex

 

 

 

SG's picture

SG

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I do not read music, so the music is not an issue. It is just words. 

 

Small church means we sing the same hymns all the time, the same ones the organist knows and the people know. =) There would not be tons I would need.

 

We, unfortunately, have more copies of VU than we have people. I also have a personally purchased copy.

 

Free copies of text is great, even me typing would be no problem as I only need a few.

 

Thanks UCC for providing text copies!!!

 

Alex, if you can find who I email at national, it would be wonderful.

Alex's picture

Alex

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StevieG wrote:

I do not read music, so the music is not an issue. It is just words.  

Free copies of text is great, even me typing would be no problem as I only need a few.

 Thanks UCC for providing text copies!!!

 

Alex, if you can find who I email at national, it would be wonderful.

I emailed the main office and they sent me this email. Chris emailed me a copy of the text to both Voices and More Voices. He also sent me an email asking me to tell him what technology I was using and others things but have yet to reply. So I better.

 

One of the good things that resulted from grade 4 was that I learned to read music, not well, but well enough to assist me that I wanted to use the music as well as the words.And so due to multiple delays caused by different factors I could not proceeds until now.  Anyways heres the letter and the email of Chris

 

 

Good news. The United Church of Canada can make available Voices United, the words only edition in either MS Word or in a Pdf file format. You can contact Chris Dumas and let Chris know what format works best for your PDA and whether this can be sent to you by e-mail, on a CD or by some other means. He can be reached at cdumas@united-church.ca.

 

The Executive Minister of Congregational Educational and Community Ministries (CECM), Harry Oussoren has been made aware of your request and the need for a wider awareness of the barriers to people with disabilities and for policies in this regard. I hope this is helpful.

 

Best wishes,

Ralph Colley

 

Ralph Colley, Manager, UCRD, United Church Resource Distribution The United Church of Canada, 3250 Bloor St. West, Suite 300 Toronto, Ontario, Canada, M8X 2Y4 416-231-7680 ext. 4116 1-800-268-3781 ext. 4116 

 

 

SG's picture

SG

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Thank you, Alex. I love you!!!! I love the UCC too!!! Wooo Hoo!!!! I hate being miked at the front doing a service and they can tell I am not singing if I don't or they know I am way off if I do. Whipppeee!!!!!!

Birthstone's picture

Birthstone

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Cheers!!!  what a great step this is, and if you've already put it together, I think they should be centering around you to develop it further.

Hurrayyy!!!

Alex's picture

Alex

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oops

Alex's picture

Alex

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RevJamesMurray wrote:

Make a virtual name tag  saved as a document which can be read on your Itouchie thingy screen. Carry your itouch in a little pouch hanging around your neck. So when you go to coffee time, you flip to the nametag page, and there it is for all to see!

I replied to this message in quoting another person by mistake.

"Excellant Idea. I will need to go to Staples and see if I can get a plastic name tag holder that will fit my ipod touch, or find an ipod holder that I can hang around my neck. I am worried about the power being drained, but I could achieve the same effect by printing my name on a sticker and adhering it to the back of the ipod touch."

 

The later today i realised you were either joking or almost as geekish as me . I now realise how using a virtual screen hanging around my neck with my name lite up on my ipod like an ornament on a  Christmas Tree would be the ultimate pen pocket protector, or pocket calculator, or sliderule and it would scream look at what a geek I am.

So I came back to say I might be slow to get a joke or to warn you that you might have had a geek lapse.

I do however like the idea of using a cool looking decorative  ipod thingie to hang my neck, with my name on the front of the pouch. However I cannot find anything that hangs an ipod touch that is cheap.

The plastic name tag holders that they sell at Staples are a little too small for my ipod touch. Besides the plastic holder with a thin string is not cool.This gave me an idea. 

We (The United Church)could custom order some plastic pouches custom made for different devices ipod touches, smartphones. If we find a plastics company in some developing country that has a progressive policy towards hiring children. We could order a million or so, likely paying only pennies per pouch. We could also have children in another developing country make attractive very thick string. Thus giving good jobs to poor children. And we all know how much they need jobs now since they have nothing to do because school is too expensive.

Then we could have our children in Sunday School do something useful for a change and make attractive decorative covers for the plastic and attach the string. Leaving One Side to put your name on, while on the otherside something nice, or cool messages like "1 cross + 3 nails = 4given." We could sell them at conventions and other places for over 40 dollars. It's incredible what you can get for something just by calling it an ipod or smartphone accessory.

We would make  enough money to buy GM and keep all the churches open until everyone has died. 

 

But seriously I do like the idea of putting my name on the back of  my ipod, I just do not want to pay 40 dollars. So if anyone spots one or knows of something that would serve the same purpose and still look cool, but not screaming geek, let me know.

Pinga's picture

Pinga

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lol, heh Alex...I would like something similair....though I am sure I will hear from someone that having it that close to my body (heart/lungs/whatever) will killme.

Birthstone's picture

Birthstone

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oh Alex - you're making me laugh!!!  lol

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