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Alex

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A Cure for AIDS? being Developed by Canadians. Now What?

 http://www.theglobeandmail.com/news/national/discovery-by-canadian-led-team-could-lead-to-aids-cure/article1191121/

 

Everyday I have to take pills. These pills cause side effects which cause me to take more pills. 

This is because these pills only destroy HIV in the blood. HIV remain hidden from these drugs in other parts of the body. If I stop taking my pills the HIV resumes attacking my immune system and I would soon return to the point I was at when I was riddles with cancer, going blind by CMV, and suffering the effects of HIV encephalitis.

Could the end be near, near enough so that I can stop taking these pills before I have to start taking the pills the ageing need to take?

Will I be able to find a mate and if he is not HIV+ will I not have to worry about infecting him someday if I forget my pills one time too many?

What would it mean? I have lived with HIV all of my adult life. What would it mean to live without HIV? Who would I be?

Do you know what its like to be told in your twenties that you are terminally ill, and survive pallative care? To celebrate living with a chronic illness? Only to now have a chance to celebrate a cure? 

Joy, hope, fear. 

Way to go Canadian Scientists.  Canada Day will be extra special for me this year.

 

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YouthWorker's picture

YouthWorker

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Not sure if this is the same group of scientists (probably is), but some researchers are thinking of ways to use this development to their advantage, possibly taking a solid step towards a cure.

 

New approach to fighting AIDS combines HIV, chemo therapies

http://www.cbc.ca/health/story/2009/06/21/aids-hiv-chemotherapy326.html

Alex's picture

Alex

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Will I

RevMatt's picture

RevMatt

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I'm a huge Rent fan.

 

Alex, this is obviously exciting news, and so wonderful that such research has been able to emerge from this country, where our government is so hostile to research in general, and to AIDS research in particular.

LBmuskoka's picture

LBmuskoka

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Wonderful news Alex, thank you for sharing.

 

Sad to see that the leading researcher feels the need to move to the US though.

 

LB


Hope is like a road in the country; there was never a road, but when many people walk on it, the road comes into existence.     Lin Yutang

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Alex

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 I have belonged to  support group for long term survivors like the one in  Rent.

 

The last group I belonged started 16 years ago and I have been a regular member for 14 years. Last week we were told that since we have dropped to below 6 members (3) due to resent losses the socail service agency is lilkely to cancel it. We break for the summer so last Wednesday we had our last group.

 

We laughed and we laughed as we remembered former group member who had died. Only two of us had been in the group for 14 years. We did not take newly infected member as a lot of the issues we delt with were due to ongoing mulitple losses which does not affect the newly infected as much.

 

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Alex

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 However with the end of AIDS we are still left with grief and our resilence.

For more infor about long term multiple loss check http://www.abpo.org/

Here is there definition of Resilency. RevMatt and others who know me do you think it describes me?

Resiliency is the capacity of individuals and groups to move forward 
with hope, clarity and effectiveness in the face of 
the multiple loss, complex grief, and ongoing transition related to HIV/AIDS.

 

Resiliency Framework : “The Cone”

A theoretical framework which:

  • depicts the interconnectedness of AIDS-related multiple loss and the ways it is complexly layered in the emotional, relational, community and socio-political realities of AIDS workers.
  • isolates these constituent elements, providing a means to individually and collectively identify the impact of loss, recognize coping skills and develop new strategies of resiliency.
  • recognizes that people have considerable motivation and commitment in response to the issues and shared personal and organizational values.

Negative Impact of Multiple Loss:

  • Increased emotional distress: anger, anxiety, sorrow, survivor guilt
  • Depression, suicidal ideation, sedative use
  • Increased social isolation and stigma
  • Catastrophic thinking and change in worldview

Postive Impact of Multiple Loss:

  • Bereaved and professionals working in a climate of loss are known to be resilient
  • Adaptation to multiple loss
  • Creative coping strategies

Characteristics of Resiliency:

  • Ongoing and consistent self-care
  • Boundary setting – emotional and physical distancing
  • Find meaningful ways to honour the losses
  • Build social supports, relating with at least one person who understands your “lived experience”
  • Resilient personal coping strategies that emphasize: optimism, active problem solving and positive reappraisal
  • Personal growth through spirituality, valuing interpersonal relationships and community rituals
  • Social activism and volunteerism

if.i.were.a.boy's picture

if.i.were.a.boy

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Hope is the greatest thing to have! Been there, Been despaired. Dont quite like it. So any chance I get I spread the message of HOPE. It lives. If you let it. Much Grace to You Alex.

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